I'm not even sure where to start...
In November, I had my annual physical; I have to get one every year for insurance purposes. I was nervous about my cholesterol going back up because of the horrible way I'd been eating for three months. Last year was the first time in my life that my cholesterol was in the "normal" range and I really wanted it to stay there.
To my surprise, it went down again! Only by a few points, but it motivated me to get back to eating healthier because next year, I may not be so lucky. The other stuff (blood pressure, etc) was good. But. My doctor noticed my thyroid was enlarged. I wasn't surprised or concerned because when I was pregnant with Noah, my OB discovered a nodule on my thyroid. I had a couple of ultrasounds but it wasn't suspicious so nothing ever came of it.
A few months ago, I was going to post a Wednesday Weigh-In. I took my usual mirror selfie and I noticed that my thyroid seemed bigger than usual. (Ever since the nodule, my thyroid has been slightly enlarged, but that's pretty common. I never worried about it because I'd had it checked out.) I wasn't even going to mention it to my doctor.
My doctor is very conservative when it comes to ordering tests. She's great at what she does, but sometimes I feel like she doesn't take me very seriously about things. She's actually known me since I was a kid; my mom used to be the office manager for years. Anyway, when she showed concern about my thyroid, I knew I'd better take it seriously because she's not easily concerned.
I started to wonder look back at the symptoms I'd had and didn't really put together. I'd noticed that my voice was changing a little--sounding slightly hoarse. And I've been having to clear my throat a lot. When I had COVID in September, remember how I said my throat felt like someone was squeezing it? I have that feeling a LOT and I always attributed it to anxiety; it makes me wonder if it was an enlarged thyroid all this time.
Over the last six months or so, I've also had a harder time swallowing. Nothing alarming, just something I noticed. Especially while swallowing pills, which I've never had a problem with. Between trouble swallowing, my voice changing, and my throat feeling like it's being squeezed, the signs were there. I just didn't put them all together.
My doctor ordered lab work to check my TSH (thyroid stimulating hormone) to see if my thyroid hormones were being affected by my enlarged thyroid. (It came back normal.) She also ordered an ultrasound, which is the standard to check out what's going on with the thyroid.
I called right away to make the appointment and was able to get in just two weeks later for the ultrasound. The ultrasound tech isn't allowed to explain what they are seeing, but I could see the monitor and even though I'm not a trained tech, I could tell something was abnormal. I asked the tech if that was a nodule, but since he couldn't answer me, I just had to wait for the results.
Thanks to the holiday, it took almost a week to get the results (usually test results show up in my online chart within 24 hours or so). It turns out that the left lobe of my thyroid is VERY enlarged. And it has a large mass (the mass is about the same size as the lobe itself!). Finally, there is a cyst inside the mass. Lucky me, right?
There is a grading system for thyroid masses to determine how likely they are to be malignant. The system ranges from 1 (very unlikely to be cancer) to 5 (most likely). Due to the size and composition of the mass, mine is a 3--so it's not terrible but not great either. The odds are still very much in my favor that it's benign.
I was then referred to an ENT (ear, nose, and throat) doctor. He scoped me to check out my vocal cords (that was uncomfortable--putting a tiny camera through my nose and down my throat--but kind of cool to see on the monitor). The doctor was mostly concerned about how quickly the mass has grown and my symptoms have appeared. I started noticing them about six months ago, but after I had COVID they really became more prominent. I just thought maybe it'd had something to do with my tooth/jaw.
The ENT ordered more blood work and a biopsy. It's a needle biopsy, where they insert a needle into the mass to collect cells and look for cancer. Due to the size of the mass alone, I need to get it removed. (The doctor mentioned another option that could shrink the mass, but it's not guaranteed and I just really want this thing gone.) I'm nervous that I may lose function in my thyroid, though. If I get the surgery, it sounds like they will remove the left lobe along with the mass. I'll find out more after the results of the biopsy. (The results are needed to determine a plan of action.)
My biopsy is this Friday, the 10th. The biopsy itself is supposedly no big deal.
Speaking of no big deal, I haven't really been wanting to tell people about all of this because I don't want to hear that "thyroid cancer is no big deal" or it's "easily curable". While it probably isn't even cancer, it's very invalidating to hear. I know they mean well in trying to assure me not to worry, but to me, it's kind of a big deal. Even if it's not cancer, removing my thyroid is a major surgery--it's going to leave a very noticeable scar and I may lose thyroid function and need medication for the rest of my life.
I like hearing about others' experiences (good or bad) regarding thyroid cancer/removal, but I just don't want to what I'm going through to be dismissed as nothing. Hopefully that makes sense. Because of that, I've only told a couple of people what is going on. But I've been absent from my blog for weeks now because this has been a major part of my life over the last month. Considering the biopsy and likely surgery, this year is off to a great start! (that is sarcastic)
I've actually been eating much better over the past couple of weeks. I had some goals and things I wanted to work on this year (and I still do) but this thing with my thyroid is hanging over my head. I was hoping to go visit my friend Sarah in Arizona for our birthdays (hers is on the 22nd and mine is on the 25th of this month) but I don't want to make travel plans until I know what is happening.
Anyway, that is what's been going on most recently. In other news, Noah is moving back home! His lease is up at the end of this month and he decided he wants to save money for a down payment on a house. He realized (even though I told him a year ago!) that he could be putting all of that rent money in savings and he'll have a nice chunk of change in a year.
I'm excited to have him come home again, but it's been kind of stressful. I had turned the spare bedroom into my craft/sewing room and having to move everything out of there hasn't been easy. I have no idea where I used to keep everything! There is a LOT of stuff to find space for. We moved the treadmill, which is rarely used anymore, to the garage and I put my large sewing cabinet and the table I built for my sewing machine in the spot where the treadmill used to be. I don't love it, but it works for now.
I had a very stressful year--mentally, emotionally, and physically--and sewing was definitely my therapy. I've always enjoyed sewing, but this past year had me sewing every spare moment I had. While I'm hoping the stress calms down after this thing with my thyroid is over, having this sort of hobby-therapy has been super helpful to take my mind off of things.
Since I'm sure people will be curious about my biopsy results, I'll definitely share the news (I wouldn't bring all this up and then just leave it open-ended). I have no idea how long it takes to get the results, so it may be a couple of weeks. I'll have to follow up with the ENT to figure out a plan as well.
Despite this bump in the road, I'm going to continue to try to get my life back on track after having "let myself go" for a few months (see my previous post if you haven't--that explains what I'm referring to). I've always written end-of-the-year recaps and my goals for the new year, etc, and even though it's late, I would like to try to write a few things (I know I keep saying this and not following through--I've been overwhelmed and it's hard to even know what to write, let alone where to start).
Today, we celebrate Eli's birthday... he's 19!!
Oh Katie, so sorry to hear all of this!! Sending you the best vibes and you're right - anything that is a big deal to you is indeed a BIG DEAL and you deserve to feel validated.
ReplyDeleteMy husband had 5 kidney removed recently. It was stressful waiting, wondering, healing and hoping they don't return. He changed his diet, takes medication for the first time and life feels different, more fragile. I'm grateful for good doctors and that we've got each other to keep our sense humor and genuinely support each other when we have physical challenges.
ReplyDeleteI'm thinking about you as you wait --and hopefully get to sew. Enjoy your time with your son. ❤️🩹
Oh Katie, that is beyond stressful! I'm crossing my fingers for the best possible news to come back from the biopsy results. Regardless of what's to come, the diagnostic process itself is unbelievably overwhelming and anxiety-inducing, and it breaks my heart to think you'd feel even remotely like you're overreacting in some way -- everything you're feeling is what ANYONE would feel under the circumstances!
ReplyDeleteYou are the kindest person who's always the first to validate and support others; please know you deserve that same love and support, yourself. That's true regardless of whether you're eating well or poorly, whether your weight is up or down, whether you're feeling optimistic or down in the dumps, whether you're writing here every day or not at all. You deserve it simply because you're you -- a beautiful person inside and out, and a model for all of us of how to be a good human being.
My son was diagnosed with cancer in March of 2023, and, while it's believed he's currently in remission, it permanently changed us as a whole family. No one can really understand the trauma these kinds of medical complications can inflict unless they've been through it, themselves. Support groups related to whatever your results turn out to be (even if it's not cancer, it's still a tumor and traumatic and terrifying!) might be something to consider? Definitely don't be afraid to lean on those closest to you.
We're all here for you. Thank you for keeping us posted (even though you have no obligation to do so). Sending lots of love your way.
I know this is scary but I am rooting for you and your thyroid! Thank you as always for sharing. Sending you peaceful thoughts.
ReplyDeleteHi Katie! Your story sounds quite similar to mine in some ways. 11 years ago, after my 1st daughter was born, I was looking in the mirror at my chin and noticed a lump on my neck. After ultrasounds, a biopsy, and I also remember swallowing some radioactive iodine pill- it was ruled benign but still large and likely to continue growing. I wanted it out and had surgery- mine was on the left side so they only removed the left side. They stated I may need to be on medication but may not- sometimes with the other side left in there it will compensate for the side that is gone. My levels since have all been normal and I have not needed to go on any medication. I do have a minor scar on my neck but it sits right where my natural neck skin fold is so it’s not very noticeable. It was definitely scary til everything got figured out!! I will be thinking of you these next few weeks!
ReplyDeleteOh Katie I am so sorry to hear all of this. That is so hard and scary, especially all the unknowns. I don't have any experience with thyroids or thyroid cancer but I have had close family members go through different cancer experiences so if you ever need a chat I'm right here to lend an ear! I hope the biopsy goes well and I know it's all overwhelming right now but I'm so happy to hear you do regular exams and that this was able to be caught! Sending you all my positive vibes and all my love. Don't be afraid to reach out if you want to talk! <3
ReplyDeleteAll the hugs and support!!
ReplyDeleteWell frack. (That's not the word I said in my head.) I'm so sorry. Also, if anyone tries to downplay this as "nothing" tell them to come see ME!!! I do know several people who have been through treatment for both cancerous and benign thyroid stuff. They are well and happy. But it was not NOTHING! It's YOUR thyroid, YOUR emotions, YOUR LIFE! No one gets to tell you how to feel about it. And if they do, again, let me know and I'll have a little "chat" with them. We got your back, girlfriend. Sending hugs and all the love.
ReplyDeleteI also have thyroid nodules that are quite large. I have the ultrasound every year to monitor them since I had the needle biopsy. It's not a horrible experience but it's still a procedure that you have to go through along with all the emotions going with it. Mine were stated to be benign at this point but I'm always watching. Good to know the symptoms you had that caused more concern. I'll be waiting to hear your results.
ReplyDeleteHi Katie.
ReplyDeleteSorry to hear this.. Hugs and prayers are being sent your way. Keep us posted if you choose.
Katie, I 'm sorry you're going through this, it's definitely not nothing and I would be feeling the same as you do. And since you said you want to hear thyroid stories, good or bad, I have one for you. My mom had thyroid cancer when she was almost 19 and 9 months pregnant with me. They tried surgery while she was pregnant but my heart stopped, so they got it going again and postponed surgery til after I was born. I just had my 68th birthday and today is my Mom's 87th birthday, she's doing great and lives a very active life. She does have scars on her neck, but I'm sure the techniques have improved drastically in the past 68 years. It's never bothered her taking a thyroid pill each day. A happy outcome for sure! Sending best wishes to you.
ReplyDeleteThis is a big deal and you are entitled to your feelings. I hope it all goes well with your biopsy and I will keep my fingers and toes crossed for the best outcome.
ReplyDelete